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EVENT DESCRIPTION  
 
Event Type:  Webinar (This is an NIH Science event)
 
Title:  A Scalable Model for Returning Continually Updated Genetic Results to Consumers and Clinicians
 
Description:  Ellen T. Matloff, M.S. is a certified genetic counselor and the President and CEO of a company that has created digital genetic counseling for physicians and consumers. Matloff will present on “A Scalable Model for Returning Continually Updated Genetic Results to Consumers and Clinicians”. Matloff will outline the ethical principles that must be considered in returning understandable, useable and current genetic information. She will also discuss how to make people stewards of their genetic data, provide them with research opportunities, and offer them the ability to provide outcome data and to share their genetic data in public databases. She will describe how research participants in clinical trials and large-scale genomic studies worldwide and the 12 million consumers who’ve opted to have direct-to-consumer testing fit into this equation.
 
Series Name:  Ethical and Regulatory Issues in Cancer Research (ENRICH) Forum
 
Event URL:  https://epi.grants.cancer.gov/events/enrich-forum/index.html#matloff
 
Videocast:  Event will not be videocast
 
Special Instructions:  Reservations or registration required for this event
 
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EVENT DATE/TIME  
 
Date/Time: 
Tuesday, May 15, 2018   12:00pm - 1:00pm Add To Outlook Calendar     Add To iCal Calendar     Add To Entourage Calendar
 
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EVENT SPEAKER(S)  
 
Name:   Ellen T. Matloff, M.S.
Title:   President and CEO
Organization:   My Gene Counsel
 

EVENT SPONSOR(S)  
 
Organization(s):  [NIH] National Cancer Institute (NCI) - Epidemiology and Genomics Research Program
 

EVENT LOCATION  
 
Location:  Off Campus
Building:  https://epi.grants.cancer.gov/events/enrich-forum/
 
Other Information:  Registration is required in advance at https://epi.grants.cancer.gov/events/enrich-forum/index.html#matloff
 

EVENT CONTACT(S)  
 
Name:   Carol Weil
E-mail:   carol.weil@nih.gov
 
Name:   Charlisse Caga-Anan
E-mail:   charlisse.caga-anan@nih.gov
 
 
 
 
 
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