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EVENT DESCRIPTION  
 
Event Type:  Symposium (This is an NIH Science event)
 
Annual Lecture:  Other
 
Title:  Global Perspectives on Standards and Common Data Elements Used in Patients Data and Biospecimens Collection
 
Description:  Global Perspectives on Standards and Common Data Elements Used in Patients Data and Biospecimens Collection

Jan 25, 2017 at 10:00am-1:00pm EST

Sponsored by the NIH Data Science Special Interest Group

The NIH Data Science Special Interest Group is proud to welcome the new year of 2018 and host a session* (broadcast via webinar, see information below) about major initiatives around the world on the need for, challenges around, and implementation of standards in clinical data collections for research. The session will start with demonstrating the need for standards, follow up with some use cases and an overview of the NIH CDEs repository, and end with a question-and-answer discussion with attendees. We hope that the session will continue to increase the awareness of the importance of using standards for biomedical research and enhance collaboration and data sharing. Registrants will be able to send questions before and during the session.

*Webinar registration and session location:

Please register for Global Perspectives on Standards and Common Data Elements Used in Patients Data and Biospecimens Collection at: https://attendee.gotowebinar.com/register/787330976882155265
After registering, you will receive a confirmation email containing information about joining the webinar. Please keep in mind that although the session is planned from 10:00AM-1:00PM EDT, we requested additional time, before and after, to ensure a smooth start and ending.
NIH staff and non-NIH guests can attend the session in person in Conference Room D, in the Natcher Building.
To submit questions during the session please submit them directly in the GoToWebinar interface.

The Data Science SIG steering committee

Individuals with disabilities who need Sign Language Interpreters and/or reasonable accommodation to participate in this event should contact, Ben Busby and/or the Federal Relay (1-800-877-8339).
For questions regarding the session content /prese
 
Series Name:  NIH Data Science SIG
 
Event URL:  http://bit.do/Patient-Data-Standards-DSS
 
Videocast:  Event will be videocast LIVE on the Web
 
Videocast URL:  http:// https://register.gotowebinar.com/register/787330976882155265
 
Special Instructions:  Reservations or registration required for this event
 
  To arrange sign language interpretation for an event go to the Office
of Research Services (ORS) Interpreting Service Requests web page.
 

EVENT DATE/TIME  
 
Date/Time: 
Thursday, January 25, 2018   9:30am - 1:00pm Add To Outlook Calendar     Add To iCal Calendar     Add To Entourage Calendar
 
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EVENT SPEAKER(S)  
 
Name:   Todd Carpenter
Title:   The role of standards and identification systems in communicating science
Organization:   National Information Standards Organization
Country:   USA
 
Name:   David van Enckevort
Title:   CDEs in Biobanking - BBMRI ,and RD- Connect
Organization:   Project Manager- University of Groningen
Country:   The Netherlands
 
Name:   Marco Roos
Title:   Do not share, be FAIR! - how FAIR data principles add flexibility to using data
Organization:   Project manager-Leiden University Medical Centre (LUMC)
Country:   The Netherlands
 
Name:   Nicola Mulder
Title:   Data standards and harmonization in H3Africa
Organization:   Head of the H3ABioNet Bioinformatics Network and the Computational Bio
Country:   Sout Africa
 
Name:   Yehudit Cohen
Title:   The Israeli national biobank as a research enabler
Organization:   Director- MIDGAM, Israel National Biobank, Ministry of Health
Country:   Israel
 
Name:   Carlie Bailey
Title:   Standardizing for Science
Organization:   Director, PEDSnet Data Coordinating Center, PEDSnet- CHOP
Country:   USA
 
Name:   Shobha Sharma
Title:   NCBI BioCollections Database: an overview
Organization:   NCBI, Library of Medicine, NIH
Country:   USA
 
Name:   Lis Amos
Title:   NIH CDEs repository: an overview
Organization:   Librarian, NLM, NIH
Country:   USA
 

EVENT SPONSOR(S)  
 
Organization(s):  [NIH] National Library of Medicine (NLM)
 

EVENT LOCATION  
 
Location:  On the main NIH Campus
Building:  in the Natcher Building
Room:  Conference Room D
 
Street Address:  NIH
City:  Bethesda
State:  Maryland
Zip Code:  20892
Other Information:  On line registration for webinar:
Please register for the symposium at: https://attendee.gotowebinar.com/register/787330976882155265
After registering, you will receive a confirmation email containing information about joining the webinar. Please keep in mind that although the session is planned from 10:00AM-1:00PM EDT
 

EVENT CONTACT(S)  
 
Name:   Yaffa Rubinstein
E-mail:   yaffa.rubinstein@nih.gov
Phone:   301-827-6516
 
 
 
 
 
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