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EVENT DESCRIPTION  
 
Event Type:  Meeting (This is an NIH Science event)
 
Title:  NCATS Toolkit for Patient-Focused Therapy Development: Demonstration and Dissemination Meeting
 
Description:  On Sept. 8, 2017, the NIH National Center for Advancing Translational Sciences will launch a new, centralized online resource portal that will enable patient groups to make progress along the entire translational science spectrum, no matter where they might be in that process.

The NCATS Toolkit for Patient-Focused Therapy Development: Demonstration and Dissemination Meeting will take place from 9 a.m. to 4 p.m. ET on the NIH campus in Bethesda, Maryland. The event will enable the rare diseases and other patient communities to learn more about the toolkit, including how it can streamline their therapeutic development activities. Participants also will have the opportunity to provide input into how the toolkit can be refined, expanded and made even more useful.

Developed in collaboration with patients and rare disease advocates, the toolkit is a centralized online portal for resources and tools that will cover the broad therapy development landscape, including:

*How to establish a patient registry;
*How to drive patient-focused discovery and pre-clinical research and development;
*How to work with NIH and the Food and Drug Administration; and
*How to conduct post-market surveillance.

View the agenda: https://events-support.com/Documents/NCATS_Toolkit_Meeting_Draft_Agenda_2017-09-08.pdf

Learn more and register: https://ncats.nih.gov/events#toolkit
 
Event URL:  https://events-support.com/events/NCATS_Toolkit_Meeting
 
Videocast:  Event will be videocast LIVE on the Web
 
Videocast URL:  http://videocast.nih.gov
 
Special Instructions:  Reservations or registration required for this event
More information will be available prior to the event
 
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EVENT DATE/TIME  
 
Date/Time: 
Friday, September 08, 2017   9:00am - 4:00pm Add To Outlook Calendar     Add To iCal Calendar     Add To Entourage Calendar
 
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EVENT SPEAKER(S)  
 
Name:   Ronald Bartek
Organization:   Friedreich’s Ataxia Research Alliance
 
Name:   Annie Kennedy
Organization:   Parent Project Muscular Dystrophy
 
Name:   Petra Kaufmann, M.D.
Title:   Director, Office of Rare Diseases Research
Organization:   NCATS
City/Province:   Bethesda
State:   Maryland
 
Name:   Megan O’Boyle
Organization:   Phelan-McDermid Syndrome Foundation
 
Name:   Jennifer Farmer, M.S., C.G.C.
Organization:   Friedreich’s Ataxia Research Alliance
 
Name:   Kenneth Hobby
Organization:   Cure SMA
 

EVENT SPONSOR(S)  
 
Organization(s):  NIH National Center for Advancing Translational Sciences
 

EVENT LOCATION  
 
Location:  On the main NIH Campus
Building:  Building 45 (Natcher Building)
 
Street Address:  45 Center Drive
City:  Bethesda
State:  Maryland
Zip Code:  20892
 

EVENT CONTACT(S)  
 
Name:   Geoff Spencer
E-mail:   spencerg@mail.nih.gov
Phone:   301-435-0888
 
 
 
 
 
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