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EVENT DESCRIPTION  
 
Event Type:  Twitter Chat
 
Title:  #NIHSclerodermaChat June 29, 1 p.m. EDT
 
Description:  In recognition of World Scleroderma Day, June 29, the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) will host a Twitter chat on scleroderma from 1 – 2 p.m., EDT. The National Heart, Lung and Blood Institute (NHLBI); the Scleroderma Foundation; and the Scleroderma Research Foundation will partner with NIAMS in hosting #NIHSclerodermaChat. Each of the partners will have subject matter experts on hand to discuss the symptoms, impact and treatments of scleroderma, as well as current research and advances in understanding the disease. Chat followers will also learn how they can participate in clinical trials for scleroderma.

Pravitt Gourh, M.D., of the NIAMS Rheumatology Fellowship and Training Branch will give input from NIAMS. NIAMS grantees Dinesh Khanna, M.D., from the University of Michigan, and Virginia Steen, M.D., from Georgetown University, will also participate from their institutional Twitter accounts.

To follow the chat, go to https://twitter.com/NIH_NIAMS and type #NIHSclerodermaChat in the search field. You can follow the chat on Twitter even if you do not have a Twitter account. You will need to sign in to a Twitter account to post questions or comments. You can also follow the chat on the third-party sites Twubs.com, TweetChat.com, or Twitterfall.com by signing in with a Twitter account.

Systemic scleroderma affects an estimated 49,000 people in the United States, with many more experiencing other forms of the disease. In addition to the skin tightening and thickening characteristic of the disease, scleroderma can damage the intestines, lungs, heart and kidneys. Research efforts are focusing on the immune system, genetics, the process of fibrosis, and finding targets for new treatments.
 
Event URL:  https://twitter.com/NIH_NIAMS
 
Videocast:  Event will not be videocast
 
Special Instructions:  To arrange sign language interpretation for an event go to the Office
of Research Services (ORS) Interpreting Service Requests web page.
 

EVENT DATE/TIME  
 
Date/Time: 
Thursday, June 29, 2017   1:00pm - 2:00pm Add To Outlook Calendar     Add To iCal Calendar     Add To Entourage Calendar
 
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EVENT SPEAKER(S)  
 
Name:   Pravitt Gourh, M.D.
Organization:   NIAMS Rheumatology Fellowship and Training Branch
 

EVENT SPONSOR(S)  
 
Organization(s):  [NIH] National Institute of Arthritis, Musculoskeletal and Skin Diseases (NIAMS)
 

EVENT LOCATION  
 
Location:  On the main NIH Campus
Building:  Building 31
 
Street Address:  31 Center Drive
City:  Bethesda
State:  Maryland
Zip Code:  20892
 

EVENT CONTACT(S)  
 
Name:   Richard Clark
E-mail:   ClarkR@mail.nih.gov
Phone:   301-496-8190
 
 
 
 
 
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