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Event Type:  Webinar (This is an NIH Science event)
Title:  Compensating Participants who Give us their Tissue: The Story of Henrietta Lacks and the Ethics of Paying for Biological Specimen Donations
Description:  Donations
Debra Mathews, Ph.D., M.A.
Assistant Director for Science Programs, Berman Institute of Bioethics and Associate Professor, Department of Pediatrics, Johns Hopkins University.

Henrietta Lacks, foremother of the rapidly reproducing and scientifically invaluable HeLa cell lines, was a terminal cancer patient at Johns Hopkins in 1951 when her tissue was (in accordance with standard practice at the time) collected and stored for future research without her knowledge or consent.

Dr. Debra Matthews, Assistant Director for Science Programs for the Johns Hopkins Berman Institute of Bioethics, and an Associate Professor in the Department of Pediatrics, Johns Hopkins University School of Medicine,will explore the ethical issues surrounding compensation for tissue donation as well as continued research uses of HeLa tissue, including the HeLa genome, and discuss the different and sometimes contradictory views of Lacks family members regarding these uses.
Series Name:  Ethical and Regulatory Issues in Cancer Research (ENRICH) Forum
Event URL:
Videocast:  Event will not be videocast
Special Instructions:  Reservations or registration required for this event
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Thursday, June 08, 2017   10:00am - 11:00am Add To Outlook Calendar     Add To iCal Calendar     Add To Entourage Calendar
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Name:   Debra Mathews
Title:   Assistant Director for Science Programs, Berman Institute of Bioethics
Organization:   Johns Hopkins University
City/Province:   Baltimore
State:   Maryland
Country:   USA

Organization(s):  [NIH] National Cancer Institute (NCI)

Location:  Off Campus
Building:  Key West Facility - Medical Building
Street Address:  9610 Medical Center Drive
City:  Rockville
State:  Maryland
Zip Code:  20850
Other Information:  In-person participation is for NCI staff only due to limited space. All are welcome via webinar. To register for the webinar, go to


Name:   Carol Weil
Name:   Charlisse Caga-anan
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